I'AM SHOCKED IT HAS BEEN 8 MONTHS. THERE IS WAY TO MUCH TO UPDATE MY FOLLOWERS ON!! U ALL ARE IN MY THOUGHTS AND PRAYERS. I ASK THAT U ALL CONTINUE TO PRAY FOR A LIVE DONOR KIDNEY. MY ORIGINAL DONOR I THINK IS STRUGGLING WITH HER ORIGINAL DECISION BECAUSE SHE HAS BECOME A NEW MOM.THERE WILL BE NO HARD FEELINGS IF SHE SAYS NO. MAYBE WITH TIME SHE WOULD BE OK WITH IT! REGARDLESS SHE WOULD HAVE TO HAVE A REPEAT BLOOD TEST BECAUSE WHEN MY SON WAS CHECKED HE A COURSE WOULD BE A CANIDATE BUT BECAUSE I HAD 8 BLOOD TRANSFUSIONS AND COULD OF AQUIRED ANTIBODIES THAT WOULD FIGHT HIS ORGAN THEY HAD TO MIX OUR BLOOD AND THERE WAS AN INSTANT REACTION. IT HAS BEEN DETERMINED THAT I ONLY HAVE A 19% CHANCE TO FIND A DONOR. I FEEL DOWN A LOT.DIALYSIS IS NOW 4X'S A WEEK. THATS MY LIFE OR SO IT SEEMS. PLZ CONTINUE TO KEEP MYSELF AND FAMILY IN YOUR PRAYERS. THANK U AND GOD BLESS. I WONT GIVE UP ON HIM!!

Gone to long

   I feel bad i have not blogged since May. Health issues have kept me down and out. I just
returned home from the hospital today. Good news, no cancer in the bladder
I had been passing blood.
  Now the tumor on the parathyroid, we are hoping will respond to a med that has to be
special ordered from a specialty pharmacy for 800 dollars a month.The tumor had been treated
since August with an IV drug @ dialysis 3x/wk but over the last month has been out of
control which has had some unbearable symptoms.
  These two issues came up and made the other problems be put to the side.To find a kidney
was the main issue @ hand prior to all this. But the doctors want everything resolved before
moving on.
   I'll say good noc for now. Hope to be back soon. Will continue to keep you all 
 in my thoughts and prays. God Bless. Please keep me in your prays and that we will find
that one special kidney. 

Opening of Fishing

   Good evening! This weekend my husband went fishing since it is the
opening of fishing here. He goes away every year at this time. I am
spending the weekend at home with my daughter, her husband, and my
nephew and his wife who are visiting. It's a nice change of pace.
 
   Last weekend I was hospitalized again with flu like symptoms. I was
told it was a severe electrolyte imbalance which can be life threatening.
Life is so fragile.  I am glad that this weekend I can enjoy spending time
with family. We have already shared a few dozen laughs.
 
   Today, I have a special intention for a loved one. God knows his heart
even when he is struggling. Please pray that he is filled and guided by the
holy spirit daily. I also pray that he will soon find a job in the field he
graduated in: market research and research analysis. It has been hard on
many with the struggling economy.

Thanks and God Bless!

Hospitalized

    I'm glad to be blogging again. I was in the hospital since February 26th.  
I was admitted for a severe bleed. I was bleeding from the lungs, nose and
mouth. I needed 8 blood transfusions and two bags of plasma. Plasma helps
your blood to clot. This brought back a lot of memories for the both of us.
I don't want to go into to much depth because I will be writing about this in
my next book. There were two spiritual encounters, prior to this traumatic
event. I think of you all often. Please keep us in your prays and we will do
the same. God Bless...Julie                                                                                                                                                                                                      

Lost in Time

   Sorry it has been so long since I last blogged. My mom came home from
Florida last week and I still have not seen or talked to her yet. She left last
November to spend time with my sister Pat. On February 3rd it was Pat's
birthday. I thought about her all day and when I was going to call it was
midnight.  My nephew that was born in December I have not seen either.
He may be crawling by the time I see him again.

   I also had plans to spend a day with my sister and niece to go shopping,
out to eat, and pick up my mom. Before I was going to visit, my two year
old niece needed a nap. I laid down as well but never woke up. My husband
came home from a day of fishing and found me totally out of it. My blood
sugar was over 600. I missed out on a day with them.

   I took an oath recently that no matter how I feel I'm going to try to spend
time with my family. Family is very important to me and I miss spending time
with them. Since then I was able to make it to a few of my nieces' basketball
games, went to mass with family, and to brunch afterwards.  I hope to spend
more time with my family in the future. I love you all and God bless!

Being Challenged by the Evil One

   The phantom pain I suffered this past week is beyond comprehension. No amount of
pain medication  would relieve the pain I felt. This is a result of the internal burning that
consumed my whole body when reacting to an iv antirejection drug. According to the
doctors at Mayo in Rochester Minnesota and the Doctor who did my above the knee
amputations at Regions Burn Center in Minnesota,this was all uncharted territory.
Doctor's who practiced for more then 30 years say they never seen anything like this.
 
   If you have not read the first book Walk On I would encourage you to do so. I have
medical photos in the book. I debated about doing this, but without the pictures you
can't begin to understand the miracle. In the pictures I'm clinically dead.
 
   Once the family got there my husband refused to let them take me off life support.
He told the Doctor's they didn't know me, my faith or determination. I was brain dead.
All organs failed and I bleed out having a blood count of 3,when it should of been 12
to 14 pints. They did 16 blood transfusions and then stopped. Prayer vigils were held
around the clock and on the 30th day I began to come out of the coma. 
 
   This is when the journey began. I know Jesus would of taken me but I wanted to
glorify God by writing the book Walk On. My fingers and hands and left ear were
suppose to fall off; amazingly they healed. Once again no one can even imagine this
without  looking at the pictures. My body is scarred but not my face, hands, or arms.
God is good!!
 
   Now after that long explanation the phantom pain comes from the burnt and severed
nerve endings. My legs and feet feel like they are still there. My feet will feel like I'm
stepping on hot coals and at times I can feel them sawing the legs off. All I can do is
close my bedroom door and cry and scream for hours. My husband will come in when
he can't stand it anymore. I reassure him there is nothing he can do.

   This pain I offer up as a human sacrifice. Some people think I'm nuts when I talk like
this, but I need to justify this in my own mind. It's never lasted a week and I really don't
know if or when I will crack. Let's give glory to God, enjoy the moment, and live for
tomorrow.

Prayers For A Healing

   Sorry for the delay. I've been consumed with worry and anxiety. I
know there is nothing to fear but fear it's self. Even so I get lost in my
emotions. Will I ever get off dialysis? It seems like one road block
after another.
 
   Over the holidays my son wanted to give me a kidney and this led to
more tears.It goes much deeper then that. I'll address this more in my
next book.
 
    It brought to light another complication, I developed antigens from a
previous blood transfusion.This means that I will more then likely reject
a kidney transplant.The list of potential donors is decreased drastically.
 
    I was told I have to have a live donor and they don't have to be blood
related. My siblings have been ruled out as possible donors. This to will
be explained in the sequel.
 
    If I receive a donor they will have there own team of doctors. All
expenses would be paid by the recipient which in this case would be
myself. The donor would then have their kidney removed laproscopically
and is hospitalized for a day. Amazingly their other kidney enlarges and
they loose no kidney function.
 
   Being a nurse I was unaware of these facts. If there was more education
on organ donation I believe there would be more hope and lives saved!